The Illness Narratives

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The Illness Narratives

Author : Arthur Kleinman
ISBN : 9781541674608
Genre : Medical
File Size : 74.86 MB
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From one of America's most celebrated psychiatrists, the book that has taught generations of healers why healing the sick is about more than just diagnosing their illness. Modern medicine treats sick patients like broken machines -- figure out what is physically wrong, fix it, and send the patient on their way. But humans are not machines. When we are ill, we experience our illness: we become scared, distressed, tired, weary. Our illnesses are not just biological conditions, but human ones. It was Arthur Kleinman, a Harvard psychiatrist and anthropologist, who saw this truth when most of his fellow doctors did not. Based on decades of clinical experience studying and treating chronic illness, The Illness Narratives makes a case for interpreting the illness experience of patients as a core feature of doctoring. Before Being Mortal, there was The Illness Narratives. It remains today a prescient and passionate case for bridging the gap between patient and practitioner.
Category: Medical

Narrative And The Cultural Construction Of Illness And Healing

Author : Cheryl Mattingly
ISBN : 0520218256
Genre : Social Science
File Size : 60.55 MB
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"A valuable collection. . . . The essays in the volume are all fresh, the result of recent work, and the opening chapter by Garro and Mattingly places the current trend in narrative analysis in historical context, explaining its diverse origins (and constructs) in a range of disciplines."—Shirley Lindenbaum, author of Kuru Sorcery "A good place to consult the narrative turn in medical anthropology. Thick with the richness and diversity and stubborn resistance to interpretations of human stories of illness. An anthropological antidote for too narrow a framing of the complex tangle of ways-of-being and ways-of-telling that make medicine a space of indelibly human experiences." —Arthur Kleinman, author of The Illness Narratives
Category: Social Science

Illness As Narrative

Author : Ann Jurecic
ISBN : 9780822977865
Genre : Literary Criticism
File Size : 32.11 MB
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For most of literary history, personal confessions about illness were considered too intimate to share publicly. By the mid-twentieth century, however, a series of events set the stage for the emergence of the illness narrative. The increase of chronic disease, the transformation of medicine into big business, the women’s health movement, the AIDS/HIV pandemic, the advent of inexpensive paperbacks, and the rise of self-publishing all contributed to the proliferation of narratives about encounters with medicine and mortality. While the illness narrative is now a staple of the publishing industry, the genre itself has posed a problem for literary studies. What is the role of criticism in relation to personal accounts of suffering? Can these narratives be judged on aesthetic grounds? Are they a collective expression of the lost intimacy of the patient-doctor relationship? Is their function thus instrumental—to elicit the reader’s empathy? To answer these questions, Ann Jurecic turns to major works on pain and suffering by Susan Sontag, Elaine Scarry, and Eve Sedgwick and reads these alongside illness narratives by Jean-Dominique Bauby, Reynolds Price, and Anne Fadiman, among others. In the process, she defines the subgenres of risk and pain narratives and explores a range of critical responses guided, alternately, by narrative empathy, the hermeneutics of suspicion, and the practice of reparative reading. Illness as Narrative seeks to draw wider attention to this form of life writing and to argue for new approaches to both literary criticism and teaching narrative. Jurecic calls for a practice that’s both compassionate and critical. She asks that we consider why writers compose stories of illness, how readers receive them, and how both use these narratives to make meaning of human fragility and mortality.
Category: Literary Criticism

Illness Narratives In Practice Potentials And Challenges Of Using Narratives In Health Related Contexts

Author : Gabriele Lucius-Hoene
ISBN : 9780198806660
Genre : Medical
File Size : 69.35 MB
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What is it like to live with an illness? How do diagnostic procedures, treatments, and other encounters with medical institutions affect a patient's private and social life? By asking these types of questions, illness narratives have gained a reputation as a scientific domain in medicine in the last thirty years. Today, a patient's story plays an important role in doctor-patient communication and the development of a healing relationship. However, whereas patient experiences have been well acknowledged, methodologically reflected upon and widely collected as research data, less consideration has been invested in exploring how they work in practice. Used in the context of diagnosis, treatment, and teaching, patient stories give us a new perspective on how healthcare could be improved. Illness Narratives in Practice: Potentials and Challenges of Using Narratives in Health-related Contexts highlights the problems, challenges, and opportunities we face when using patient perspectives in practice and research in a clear format to provide readers with a comprehensive overview of this field. It investigates the epistemological foundations and communicational properties of illness narratives, as well as the pragmatic effects of using them as clinical and educational instruments. Significantly, it presents new examples from patient intakes and interviews that illustrate the disparity in communication between patients and medical professionals. The studies in this book also evaluate the experiences of medical practitioners and students who consciously use patient narratives as a tool for improved communication and diagnosis. Divided into eight sections with practical examples for medical teaching and practice, this book covers the use of patient narratives in communication training and decision making across medicine and psychotherapy. In addition, it reflects on the ethical aspects of working with a patient's personal experience of their illness, reports on cultural differences across the globe, and analyses how patients' stories are used in politics and the media. Written by scholars from multiple disciplines across clinical and theoretical fields, this rich resource provides a critical stance on the use of narratives in medical research, education, and practice.
Category: Medical

Stories Of Illness And Healing

Author : Sayantani DasGupta
ISBN : UCSC:32106018986130
Genre : Health & Fitness
File Size : 70.16 MB
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A collection of women's illness narratives Stories of Illness and Healing is the first collection to place the voices of women experiencing illness alongside analytical writing from prominent scholars in the field of narrative medicine. The collection includes a variety of women's illness narratives--poetry, essays, short fiction, short drama, analyses, and transcribed oral testimonies--as well as traditional analytic essays about themes and issues raised by the narratives. Stories of Illness and Healing bridges the artificial divide between women's lives and scholarship in gender, health, and medicine. The authors of these narratives are diverse in age, ethnicity, family situation, sexual orientation, and economic status. They are doctors, patients, spouses, mothers, daughters, activists, writers, educators, and performers. The narratives serve to acknowledge that women's illness experiences are more than their diseases, that they encompass their entire lives. The pages of this book echo with personal accounts of illness, diagnosis, and treatment. They reflect the social constructions of women's bodies, their experiences of sexuality and reproduction, and their roles as professional and family caregivers. Finally, and perhaps most importantly, Stories of Illness and Healing draws the connection between women's suffering and advocacy for women's lives.
Category: Health & Fitness

Reading And Writing Epidemics

Author : Samantha Allen Wright
ISBN : OCLC:1056157419
Genre : American literature
File Size : 33.58 MB
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Reading and Writing Epidemics: Illness Narratives as Literature explores illness narratives as a genre in 20th-and 21st-century American literature, paying close attention to the intersections of disability studies and the medical humanities. Focusing mainly on book-length narratives of illness and disability, my project traces the development and lineage of the illness narrative from early American nonfiction writing, such as Puritan redemption narratives, to literary modernism and to contemporary memoir. I argue illness narratives are intensely interdisciplinary; to understand both the importance and influence of this genre within American literature and the broader culture, illness narratives need to be read through both literary and disability studies frameworks to challenge ableist assumptions and demonstrate how illness narratives are of both historical and literary importance in 20th and 21st century America. To explore the development of illness narratives as a genre in American literature, I examine a variety of texts, including Katherine Anne Porter's "Pale Horse, Pale Rider," Bentz Plagemann's My Place to Stand, Arthur Ashe and Arnold Rampersad's Days of Grace: A Memoir, and Richard Preston's The Hot Zone: The Terrifying True Story of the Origins of the Ebola Virus. To substantiate my argument of these books' importance, I consider these works in conversation with critical race theory and crip theory, as these books narrate experiences of illness and disability intertwined with multicultural and politicized contexts that draw enlightening parallels to experiences of sexuality, racial identity formation, contemporary politics, and social justice.
Category: American literature

Voice Of Chronic Pain

Author : Aaron D. Williams
ISBN : OCLC:1097328327
Genre : Chronic pain
File Size : 39.81 MB
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Category: Chronic pain

Illness Narratives Of Women With Systemic Lupus Erythematosus And Family Communication

Author : Katherine M. Castle
ISBN : 1321975945
Genre :
File Size : 84.6 MB
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Systemic lupus erythematosus (SLE) is a prominent, yet under-studied autoimmune condition that is both life limiting and potentially life threatening and affects more than one million Americans, primarily women. Despite this, the disease continues to go undiagnosed and unmanaged, leading to more severe outcomes of the disease process. Though there is growing recognition of the importance of social behaviors in improving health outcomes, particularly family communication and sense-making, there is a paucity of research aimed at understanding the experience of SLE and how women make sense of the disease in family contexts. This exploratory sequential mixed methods project is framed in the over-arching theory of communicated narrative sense-making (CNSM, Koenig Kellas & Kranstuber Horstman, 2015). Grounded in the CNSM framework of retrospective storytelling and guided by Frank's (2013) typology of illness narrative types and McAdams' (1993) conceptualization of narrative tone, Study 1 employs qualitative methods to explore the illness narrative plotlines that animate the communication of women with SLE. It further explores the family communication behaviors that women describe as characterizing their SLE experience. Study 1 found six SLE narrative plotlines (i.e. ambivalent life-as-normal, ambivalent chaos, contaminated life-as-normal, ambivalent quest, contaminated restitution, and redemptive quest), four family communication behaviors (i.e. openness, avoidance, confirmation, and disconfirmation), and three SLE family myths (i.e. harmonious, abandoned, battle). Study 2 builds from these findings to integrate the qualitative findings into the quantitative strand of this research project and to quantitatively examine relationships between the SLE narrative plotlines and SLE family myths and measures of health and well-being as well. Study 2 found that narrative sense-making, both the individual SLE narrative plotlines and the gestalt SLE family myths, had implications for physical health, mental health, and family satisfaction in SLE. The implications for this study as a foundation for the development of interventions for family members, patients, and physicians working and living within the context of SLE are discussed.

Strategic Suffering

Author : Linda M. Hunt
ISBN : OCLC:63767742
Genre : Cancer
File Size : 43.78 MB
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Category: Cancer

Illness Narratives As Theory And Method

Author : Marian Burchardt
ISBN : 1529748305
Genre : Anthropology
File Size : 86.95 MB
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Illness narratives are stories whereby those afflicted articulate experiences of disease and illness. They are ways of subjectively and intersubjectively making sense of illness by linguistic means. Especially in the case of chronic diseases, illness plays a central role of people's lives and everyday experience and practices, while the initial diagnosis is often experienced as a moment of major biographical disruption. Such diagnoses call into question past experiences, current life circumstances, and the possibility to extend established routines into the future. They may even call into question the possibility to devise future plans and biographical projects at all. Against this backdrop, illness narratives can be viewed as efforts to construct illness as a meaningful event and to bring different moments into a temporal and meaningful ...
Category: Anthropology

Narrative Medicine

Author : Rita Charon
ISBN : 0199759855
Genre : Medical
File Size : 75.64 MB
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Narrative medicine has emerged in response to a commodified health care system that places corporate and bureaucratic concerns over the needs of the patient. Generated from a confluence of sources including humanities and medicine, primary care medicine, narratology, and the study of doctor-patient relationships, narrative medicine is medicine practiced with the competence to recognize, absorb, interpret, and be moved by the stories of illness. By placing events in temporal order, with beginnings, middles, and ends, and by establishing connections among things using metaphor and figural language, narrative medicine helps doctors to recognize patients and diseases, convey knowledge, accompany patients through the ordeals of illness--and according to Rita Charon, can ultimately lead to more humane, ethical, and effective health care. Trained in medicine and in literary studies, Rita Charon is a pioneer of and authority on the emerging field of narrative medicine. In this important and long-awaited book she provides a comprehensive and systematic introduction to the conceptual principles underlying narrative medicine, as well as a practical guide for implementing narrative methods in health care. A true milestone in the field, it will interest general readers, and experts in medicine and humanities, and literary theory.
Category: Medical

Identity Construction And Illness Narratives In Persons With Disabilities

Author : Chalotte Glintborg
ISBN : 9781000171624
Genre : Social Science
File Size : 68.12 MB
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This book investigates how being diagnosed with various disabilities impacts on identity. Once diagnosed with a disability, there is a risk that this label can become the primary status both for the person diagnosed as well as for their family. This reification of the diagnosis can be oppressive because it subjugates humanity in such a way that everything a person does can be interpreted as linked to their disability. Drawing on narrative approaches to identity in psychology and social sciences, the bio-psycho-social model and a holistic approach to disabilities, the chapters in this book understand disability as constructed in discourse, as negotiated among speaking subjects in social contexts, and as emergent. By doing so, they amplify voices that may have otherwise remained silent and use storytelling as a way of communicating the participants' realities to provide a more in-depth understanding of their point of view. This book will be of interest to all scholars and students of disability studies, sociology, medical humanities, disability research methods, narrative theory, and rehabilitation studies.
Category: Social Science

Institutionalizing Illness Narratives

Author : Mathew George
ISBN : 9789811019050
Genre : Social Science
File Size : 40.28 MB
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This book is an ethnographic work that uses a critical medical anthropology approach to examine the concept of fever care in the context of southern India. Through a study of fevers, the study provides a critical overview to medical practice itself, as it is said that the history of fevers is also the history of medicine. This association between fevers and medicine is as relevant today, as this in-depth study of fever care reveals. Acknowledging the central role of health institutions in creating and propagating notions about illness in society, the author examines fever care through a study of hospitals. The study examines various discourses on fevers prevalent in the southern state of Kerala, which influence policy and programmatic dimensions of the state health services system. Fever care implies those aspects related to provisioning and cost involved among public and private sector hospitals. A second and more important dimension of this book is a critique of the culture of biomedical practice, informed by the social constructivist framework and approaches in the field of science studies. Overall, the book studies the processes by which physical symptoms like fever are treated as epidemics to be controlled, and are therefore brought within a biomedical system, thereby opening up options for commercialization of care.
Category: Social Science

Narrative Research In Health And Illness

Author : Brian Hurwitz
ISBN : 9781405146197
Genre : Medical
File Size : 47.3 MB
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This comprehensive book celebrates the coming of age of narrativein health care. It uses narrative to go beyond the patient's storyand address social, cultural, ethical, psychological,organizational and linguistic issues. This book has been written to help health professionals andsocial scientists to use narrative more effectively in theireveryday work and writing. The book is split into three, comprehensive sections;Narratives, Counter-narratives and Meta-narratives.
Category: Medical

Illness As Many Narratives

Author : Stella Bolaki
ISBN : 9781474411516
Genre : Art
File Size : 82.59 MB
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Illness narratives have become a cultural phenomenon in the Western world. In what ways can they be seen to have aesthetic, ethical and political value? What do they reveal about experiences of illness, the relationship between the body and identity and the role of the arts in bearing witness to illness for people who are ill and those connected to them? How can they influence medicine, the arts and shape public understandings of health and illness? These questions and more are explored in Illness as Many Narratives, which contains readings of a rich array of representations of illness from the 1980s to the present. A wide range of arts and media are considered such as life writing, photography, performance, film, theatre, artists' books and animation. The individual chapters deploy multidisciplinary critical frameworks and discuss physical and mental illness. Through reading this book you will gain an understanding of the complex contribution illness narratives make to contemporary culture and the emergent field of Critical Medical Humanities.
Category: Art

Illness Narratives

Author : Sofia Vougioukalou
ISBN : 1529748550
Genre : Anthropology
File Size : 79.75 MB
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Interviews, ethnographies, visual methodologies, and autoethnographies have been widely used in social and clinical sciences to collect illness narratives from patients, care givers, and health-care professionals. This entry provides an overview of theories and methods relevant to collecting illness narratives with a particular focus on chronic conditions. It also discusses sensitivities and controversies associated with narrative enquiry.
Category: Anthropology

Health Illness And Culture

Author : Lars-Christer Hydén
ISBN : 9781135859053
Genre : Medical
File Size : 22.12 MB
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This collection of essays examines the interrelations between illness, disability, health, society, and culture. The contributors examine how "narratives" have emerged and been utilized within these areas to help those who have experienced d injury, disability, dementia, pain, grief, or psychological trauma to express their stories. Encompassing clinical case studies, ethnographic field studies and autobiographical case studies, Health, Illness and Culture offers a broad overview and critical analysis of the present state of "illness narratives" within the fields of health and social welfare.
Category: Medical

Narratives Health And Healing

Author : Lynn M. Harter
ISBN : 9781135610975
Genre : Health & Fitness
File Size : 73.50 MB
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This distinctive collection explores the use of narratives in the social construction of wellness and illness. Narratives, Health, and Healing emphasizes what the process of narrating accomplishes--how it serves in the health communication process where people define themselves and present their social and relational identities. Organized into four parts, the chapters included here examine health narratives in interpersonal relationships, organizations, and public fora. The editors provide an extensive introduction to weave together the various threads in the volume, highlight the approach and contribution of each chapter, and bring to the forefront the increasingly important role of narrative in health communication. This volume offers important insights on the role of narrative in communicating about health, and it will be of great interest to scholars and graduate students in health communication, health psychology, and public health. It is also relevant to medical, nursing, and allied health readers.
Category: Health & Fitness