Pediatric Palliative Care

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Pediatric Palliative Care

Author : Lindsay B. Ragsdale
ISBN : 0190051884
Genre :
File Size : 60.62 MB
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"Decision-making in palliative and end of life care can be difficult to navigate. This is even more so in pediatrics when parents may disagree with each other or for teenagers who are not yet legally able to make their own medical decisions. The best interest standard, harm principle and others standards are often applied when concerns arise over surrogate decision-making. This chapter presents a discussion of the ethical principles and a recommended approach to managing clinical situations with uncertain or conflicting surrogate decision-makers"--
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Pediatric Palliative Care Global Perspectives

Author : Caprice Knapp
ISBN : 9789400725706
Genre : Medical
File Size : 71.57 MB
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The first of its kind, this book describes pediatric palliative care in more than 23 countries. Each region in the world is covered and countries included are both resource poor and rich. Authors are multidisciplinary and regarded nationally and internationally in their field. Clinicians, advocates, policymakers, funders, and researchers will learn how programs were developed and implemented in each country. Authors describe children for whom pediatric palliative care is needed and provided for in their country. When applicable, a brief history of pediatric palliative care is included noting especially policy changes and legislative acts. For example, the chapter on Poland describes how pediatric palliative care grew from the Catholic church into a national movement spearheaded by several health care workers. The Pole national spirit that brought them through a change in political regime has also been a driving force in the pediatric palliative care movement. The chapter on South Africa, for example, illustrates how a resource poor country has been able to leverage philanthropic and government funding to make its dream of having an infrastructure of pediatric palliative care a reality. These are just a few examples of the inspiring stories that are included in this book. Readers from countries who wish to start a pediatric palliative care program, or advance an existing program, will learn valuable lessons from others who have faced similar barriers. Introduction and concluding chapters highlight the strengths and weaknesses of the modern pediatric palliative care movement.
Category: Medical

Textbook Of Interdisciplinary Pediatric Palliative Care

Author : Joanne Wolfe
ISBN : 9781437702620
Genre : Medical
File Size : 49.49 MB
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The Textbook of Interdisciplinary Pediatric Palliative Care, by Dr. Joanne Wolfe, et al., aims to inform interdisciplinary teams about palliative care of children with life-threatening illness. It addresses critical domains such as language and communication, symptoms and quality of life, and the spectrum of life-threatening illnesses in great depth. This comprehensive product takes a first-of-its-kind team approach to the unique needs of critically ill children. It shows how a collaborative, interdisciplinary care strategy benefits patients and their families. If you deal with the complex care of critically ill children, this reference provides a uniquely integrated perspective on complete and effective Apply interdisciplinary perspectives to provide the most comprehensive care. Care for patients and their families with an integrated approach designed to address physical, psychological, social, and spiritual needs. Focus on the self-care of clinicians in order to be more expert in direct patient care. Understand the importance of linking community palliative care with hospital-based palliative care. Access the full text online with regular updates along with a host of valuable resources such as education modules, research articles, patient handouts, and audio/visual materials. Implement consistent terminology for use by the entire palliative care team. Reflects the collaborative approach necessary to provide optimal care for children and their families
Category: Medical

Oxford Textbook Of Palliative Care For Children

Author : Ann Goldman
ISBN : 9780199595105
Genre : Medical
File Size : 73.53 MB
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Comprehensive in scope and definitive in authority, this second edition has been thoroughly updated to cover new practices, current epidemiological data and the evolving models that support the delivery of palliative medicine to children. This book is an essential resource for anyone who works with children worldwide.
Category: Medical

Pediatric Palliative Care

Author : Betty R. Ferrell
ISBN : 9780190244200
Genre : Medical
File Size : 56.58 MB
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Pediatric palliative care is a field of significant growth as health care systems recognize the benefits of palliative care in areas such as neonatal intensive care, pediatric ICU, and chronic pediatric illnesses. Pediatric Palliative Care, the fourth volume in the HPNA Palliative Nursing Manuals series, highlights key issues related to the field. Chapters address pediatric hospice, symptom management, pediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in pediatric palliative care. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice. Plentiful tables and patient teaching points make these volumes useful resources for nurses.
Category: Medical

Pediatric Palliative Care

Author : Stefan J. Friedrichsdorf
ISBN : 9783038973508
Genre :
File Size : 69.55 MB
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This book is a printed edition of the Special Issue "Pediatric Palliative Care" that was published in Children
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Pediatric Hospital Medicine And Pediatric Palliative Care An Issue Of Pediatric Clinics

Author : Mary C. Ottolini
ISBN : 9780323320412
Genre : Medical
File Size : 35.25 MB
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For the first time, Pediatric Clinics is devoting one issue to two clinically focused topics: Pediatric Palliative Care and Pediatric Hospital Medicine. Dr. Ottolini has organized her section to focus on a variety of issues of relevant to all pediatricians, but which pose special challenge to the Pediatric Hospitalists. As pediatric care has advanced, children who would not have survived infancy are growing into young adults with complex chronic diseases and dependence upon technology. They frequently require hospitalization to address exacerbation of underlying disease processes and procedures to improve their quality of life. The articles are devoted to patient care challenges of troubleshooting malfunctioning technology, co-managing medically complex patients pre and post-op with surgical colleagues, and the Hospitalist’s evolving role in performing procedures and sedation in this population of vulnerable patients. Also discussed rare strategies to maximize communication with parents, patients and primary care providers during hospitalization, especially for medically complex patients. Dr. Ullrich and Dr. Wolfe Pediatric have worked to bring relevant articles on palliative care to the pediatrician. While life-threatening conditions in childhood are rare, children with LTC account for a high proportion of pediatric hospital care, and about one half of such children die in the inpatient setting. The number of hospital-based pediatric palliative care programs has increased dramatically over the past decade to meet the palliative care needs of hospitalized children including symptom management, facilitation of communication, decision-making and advance care planning support, and coordination of care. Given these considerations, it is evident that the topics of pediatric palliative care and hospital medicine are fitting counterparts for this comprehensive issue.
Category: Medical

Heartsongs Of Pediatric Palliative Care

Author : Russell Hilliard
ISBN : 0977027856
Genre :
File Size : 25.74 MB
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Clinical information and case studies regarding the use of music therapy with children and adolescents receiving palliative care in hospice and home situations.
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Palliative Care For Infants Children And Adolescents

Author : Brian S. Carter
ISBN : 9781421402130
Genre : Medical
File Size : 76.10 MB
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With contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care.
Category: Medical

Palliative Care In Pediatric Oncology

Author : Joanne Wolfe
ISBN : 9783319613918
Genre : Medical
File Size : 45.98 MB
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This textbook is the first to focus on comprehensive interdisciplinary care approaches aimed at enhancing the wellbeing of children with cancer and their families throughout the illness experience. Among the topics addressed are the epidemiology of pediatric cancer distress, including physical, emotional, social, and spiritual dimensions; the role of the interdisciplinary team; communication and advance care planning; symptom prevention and management; care at the end of life; family bereavement care; and approaches to ease clinician distress. The contributing authors are true experts and provide guidance based on the highest available level of evidence in the field. The book has not only an interdisciplinary but also an international perspective; it will appeal globally to all clinicians caring for children with cancer, including physicians, nurses, psychosocial clinicians, and chaplains, among others.
Category: Medical

Handbook Of Pediatric Chronic Pain

Author : Brenda C. McClain
ISBN : 144190350X
Genre : Medical
File Size : 55.85 MB
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The purpose of this text is to provide not only the science and current knowledge of pediatric pain management but a rationale for intervention. The book is ground-breaking in that it provides pearls for the recognition and management of multiple childhood chronic pain syndromes. Also, uncommon yet confounding issues such as pain management for epidermolysis bullosa are adequately addressed. Concerns unique to pediatric patients are reviewed. While there are no firm standards in pediatric chronic pain, a care plan is offered to help guide practitioners when possible. The book will consist of 24 chapters, many co-written by a physician and a psychologist. Chapter 1 covers the history of pediatric chronic pain, the advancement pediatric pain as a clinical subspecialty, development of pediatric pain clinics, and characterization of the common pain syndromes. Chapters 2-4 cover, respectively, the research on early pain exposure and neuroplasticity, theories on the common adolescent pain syndromes, and the demographics of chronic pain in children. Chapters 5-16 discuss approaches to assessment and intervention for specific pediatric and adolescent pain syndromes. Chapters 17-23 address interventional techniques such as therapeutic blocks, neurablation, implantable systems, physical therapy, complementary therapy, and pharmacology including opioid tolerance. The final chapter discusses the role of the nurse practitioner in pediatric chronic pain.
Category: Medical

Ethics In Palliative Care

Author : Robert C. Macauley
ISBN : 9780199313945
Genre : Medical
File Size : 67.8 MB
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No specialty faces more diverse and challenging ethical dilemmas than palliative medicine. What is the best way to plan ahead for the end of life? How should physicians respond when patients refuse treatments likely to be beneficial, or demand treatments not likely to be? Who makes medical decisions for patients who are too ill to decide for themselves? Do patients have the "right to die" (and, if so, what exactly does that mean)? In this volume noted palliative care physician and bioethicist Robert C. Macauley addresses a broad range of issues from historical, legal, clinical, and ethical perspectives. Clinically nuanced and philosophically rigorous, Ethics in Palliative Care analyzes hot-button subjects like physician assisted dying and euthanasia, as well as often overlooked topics such as pediatric palliative care, organ donation, palliative care research, and moral distress. Drawing on real cases yet written in non-technical language, this complete guide will appeal to both medical professionals and lay readers.
Category: Medical

Palliative Care E Book

Author : Linda L. Emanuel
ISBN : 9781437735970
Genre : Medical
File Size : 47.37 MB
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Find out all you need to know about providing high-quality care to patients with serious illnesses from the 2nd edition of Palliative Care: Core Skills and Clinical Competencies. Drs. Linda L. Emanuel and S. Lawrence Librach, leaders in the field, address the clinical, physical, psychological, cultural, and spiritual dimensions that are integral to the care of the whole patient. They give you a broad understanding of the core clinical skills and competencies needed to effectively approach patient assessment, care of special populations, symptom control, ethical issues, and more. Clearly written in a user-friendly, high-yield format, this resource is your ultimate guidebook to the burgeoning practice of palliative medicine. Improve your pain management and symptom management skills with a better understanding of best practices in palliative care. Quickly review specific treatment protocols for both malignant and non-malignant illnesses, including HIV/AIDS, heart failure, renal failure, pulmonary disease, and neurodegenerative disease. Better understand and manage the common and unique challenges associated with delivering palliative care in various social settings, such as the ICU, hospice, and the home; and to diverse populations, such as children, elders, and vulnerable members of society. Expand your knowledge of palliative care issues with new chapters on Veterans, Special Populations, Prognostication, Delirium, Working with Families, Wound Care, Home Care, and Dealing with Economic Hardship. Find the information you need quickly and easily with a templated, high-yield format.
Category: Medical

Pediatric Critical Care E Book

Author : Jerry J. Zimmerman
ISBN : 9780323081702
Genre : Medical
File Size : 52.6 MB
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Provide the latest in superior quality care for critically ill children with the full-color, updated 4th Edition of Fuhrman and Zimmerman’s Pediatric Critical Care. In print, and now online, Drs. Bradley P. Fuhrman and Jerry J. Zimmerman use a comprehensive, organ-systems approach to help you manage a full range of disease entities. Get up-to-the-minute knowledge of topics such as acute lung injury, multiple organ dysfunction syndrome, and more. Implement new clinical techniques and diagnostic tests, weigh the varying perspectives of six associate editors with expertise in the field, reference 1,000+ illustrations to aid diagnosis, and keep sharp with online access to board-style review questions. This definitive title will ensure that you consistently deliver the very best intensive care to your pediatric patients. Focus on the development, function, and treatment of a wide range of disease entities with the text’s clear, logical, organ-system approach. Keep all members of the pediatric ICU team up to date with coverage of topics particularly relevant to their responsibilities. Keep current with the latest developments in palliative care, mass casualty/epidemic disease, acute respiratory failure, non-invasive ventilation, neurocritical care, neuroimaging, hypoxic-ischemic encephalopathy, stroke and intracerebral hemorrhage, systemic inflammatory response syndrome, acute lung injury, multiple organ dysfunction syndrome, and much more. Quickly find the information you need with sections newly reorganized for easier access. Gain the perspectives of six expert associate editors on all the new developments in the field. Understand complex concepts quickly and conclusively with a brand new full-color format and more than 1,000 illustrations. Search the full text, download the image library, and access online board review questions targeting every relevant topic, all at www.expertconsult.com.
Category: Medical

Hospice Care For Children

Author : Ann Armstrong-Dailey
ISBN : 0195133307
Genre : Medical
File Size : 39.60 MB
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Children with life-threatening and terminal illnesses--and their families-- require a unique kind of care to meet a wide variety of needs. This book, the first edition of which won the 1993 Pediatric Nursing Book of the Year Award, provides an authoritative source for the many people involved in caring for dying children. It draws together contributions from leading authorities in a comprehensive, fully up-to-date resource, with an emphasis on practical topics that can be put to immediate use. The book covers the entire range of issues related to the hospice environment and is intended for all those who participate in the hospice-care process: physicians, nurses, social workers, teachers, clergy, family therapists, parents, and community service volunteers.
Category: Medical

Textbook Of Pediatric Psychosomatic Medicine

Author : Richard J. Shaw
ISBN : 9781585629305
Genre : Medical
File Size : 79.76 MB
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The Textbook of Pediatric Psychosomatic Medicine provides a comprehensive, empirically based knowledge of assessment and treatment issues in children and adolescents with physical illness. Scholarly, authoritative, and evidence based, it is the first volume of its kind and will help to define the field going forward. Addressing a very wide range of medical subspecialties, this volume is a first step for researchers who want to obtain a review of the psychiatric issues in their respective specialties. In addition, the book offers many special features, including An exceptionally strong section on psychopharmacology in the medical setting, which is complemented by a comprehensive set of reference tables on psychopharmacological agents, including doses, side effects, and indications for use in the physically ill child. Definitive chapters on less commonly reviewed topics that are of particular relevance for clinicians who treat physically ill children, including pediatric palliative care, Munchausen syndrome by proxy, and pediatric feeding disorders. Coverage of key legal and forensic issues in pediatric psychosomatic medicine. Presentation of material in graphical and tabular formats for maximal usefulness, including templates of specific questions for assessing common psychiatric symptoms and flowcharts illustrating step-by-step approaches to pain and somatoform disorders. Relevance to a broad range of professionals, including psychiatrists, pediatricians, psychologists, nurses, medical students, and social workers who work with children in medical settings. May be adopted as a textbook for psychology undergraduate classes, social work internships, and both general and child psychiatry residency training programs. The editors are recognized both nationally and internationally as being among the foremost experts for their respective fields, and they have assembled the leading practitioners of pediatric psychosomatic medicine to create this volume. The only complete text on pediatric psychosomatic medicine, this volume is destined to prove seminal in the field and indispensable in the clinician's library.
Category: Medical

Pediatric Neurocritical Care

Author : Nicholas S. Abend, MD
ISBN : 9781617050695
Genre : Medical
File Size : 61.11 MB
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"Pediatric Neurocritical Care is by far the most comprehensive book I have read dealing with this topic... This text will provide an excellent reference for those interested in the pediatric intensive care cases or pediatrics in general. It is written very well and is chock-full of information that Practioners in a pediatric ICU setting would use." --Donna Jacobs, R. EEG T., CNIM, The Neurodiagnostic Journal Caring for children with neurocritical illness often requires multi-specialty collaboration and the understanding of an ever-expanding body of data. This book gives clinicians the up-to-date, concise, and clinically relevant guidance they need to provide optimal care to children with these acute neurologic disorders. The chapters in Pediatric Neurocritical Care are authored by experts in each individual topic, and co-edited by a neurologist and intensivist to ensure that all topics have been fully addressed from both perspectives. The book covers the complete continuum of care from assessment, monitoring, and condition specific management through rehabilitation. Early chapters present differential diagnosis and management approaches to common overarching problems such as coma, headache, and elevated intracranial pressure, followed by chapters focusing on the evaluation and management of specific conditions including traumatic brain injury, stroke, seizures, central nervous system infections, and demyelinating disorders. The final chapters address important associated psychological, social, and ethical issues. To reflect the full spectrum of specialties involved in the burgeoning field of pediatric neurocritical care, the book brings together an international group of experts from multiple disciplines including critical care medicine, anesthesiology, neurology, neurosurgery, rehabilitation medicine, psychology, and pediatric subspecialties. Pediatric Neurocritical Care features: Every topic is addressed from a neurologic and critical care perspective. Comprehensive coverage includes the evaluation of common overarching problems and management of specific conditions, in addition to discussion of related psychological, ethical, and social issues. Chapters are written by internationally known experts from the fields of critical care medicine, anesthesiology, neurology, neurosurgery, rehabilitation medicine, and many affiliated specialties.
Category: Medical

Palliative Pharmacy Care

Author : Jennifer M Strickland
ISBN : 158528369X
Genre : Medical
File Size : 36.5 MB
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Palliative care is primarily directed at providing relief to a terminally-ill person through symptom and pain management. The goal is not to cure, but to provide comfort and maintain the highest possible quality of life for as long as life remains. The focus is not on death, but on compassionate specialized care for the living. Palliative care functions best within an interdisciplinary team model that includes pharmacists playing a vital role in improving therapy compliance and outcomes.Pharmacists are practicing palliative care in a number of settings that include hospice, home care, out-patient treatment centers and hospitals. Palliative care often follows as a parallel track to the therapy for the disease. Palliative Pharmacy Care serves both as an aid to practitioners and a teaching text. Each chapter contains at least one case study with questions, key points, and clinical pearls. Inside you’ll find: A solid foundation for the history and principles of the area of practice as well as more advanced sections on specific treatment issues such as cancer and pediatrics. Symptom-management overviews for specific diseases and general health problems related to terminal illness such as anxiety, fatigue, and constipation. Pain management guidelines on topics such pathophysiology and pharmacology, nociceptive pain, neuropathic pain, equianalgesic dosing/opioid rotation, secretion management, and "death rattle." A discussion on the future of pharmacists in palliative care, setting up palliative care services and other general issues and concerns for pharmacists providing this service. And much more.
Category: Medical