Palliative Care In Amyotrophic Lateral Sclerosis

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Palliative Care In Amyotrophic Lateral Sclerosis

Author : David Oliver
ISBN : 9780199686025
Genre : Medical
File Size : 37.86 MB
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Amytrophic Lateral Sclerosis (ALS or motor neurone disease) is a progressive neurodegenerative disease that can cause profound suffering for both the patient and their family. Whilst new treatments for ALS are being developed, these are not curative and offer only the potential to slow its progression. Palliative care must therefore be integral to the clinical approach to the disease. Palliative Care in Amyotrophic Lateral Sclerosis: From diagnosis to bereavement reflects the wide scope of this care; it must cover not just the terminal phase, but support the patient and their family from the onset of the disease. Both the multidisciplinary palliative care team and the neurology team are essential in providing a high standard of care and allowing quality of life (both patient and carer) to be maintained. Clear guidelines are provided to address care throughout the disease process. Control of symptoms is covered alongside the psychosocial care of patients and their families. Case studies are used to emphasise the complexity of the care needs and involvement of the patient and family, culminating in discussion of bereavement. Different models of care are explored, and this new edition utilizes the increase in both the evidence-base and available literature on the subject. New topics discussed include complementary therapies, personal and family experiences of ALS, new genetics research, and updated guidelines for patient care, to ensure this new edition remains the essential guide to palliative care in ALS.
Category: Medical

Palliative Care In Amyotrophic Lateral Sclerosis Motor Neurone Disease

Author : David Oliver
ISBN : UOM:39015053168103
Genre : Medical
File Size : 90.99 MB
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Although new treatments for amyotrophic lateral sclerosis/motor neurone disease are being developed, these at present offer only the potential to slow the disease process. Therefore a palliative care approach to the care of the patient and their family is at the center of good clinical practice in ALS/MND. This book aims to provide and evidence based guide to the care of people with ALS/MND, including the control of symptoms, the psychosocial care of patients and their families and care in bereavement. The palliative care approach to the care of ALS/MND is outlined and the role of the multidisciplinary team emphasized. The international authorship are from many different disciplines and are all closely involved in the care of ALS patients; giving a depth of practical knowledge and experience and allowing a comparison of the differences across cultures, social circumstances, health care systmes and nations. All contributors are clinicians involved in the care of people with ALS/MND and they are able to provide clear guidelines of the care throughout the disease process, from telling of the diagnosis to death. The experience of patients and families are considered and case studies are provided to show the practical applications of the theoretical knowledge. An evidence based approach, grounded in day to day care of patients, is used. Different models of care are explored and the interaction of palliative care with other treatment regimes is addressed, as the experience from the treatment of cancer has shown that there may easily be areas of conflict and confusion if there is a lack of clarity in the care provided for patients. The book aims to provide a reference for all involved in the care of patients with ALS/MND, including neurologists, general physicians, rehabilitationists, paramedical staff, general/family practitioners and specialist palliative care teams. The care of a patient with ALS/MND, and their family, is often a challenge, but one all should take up so that patients can live life as fully as possible.
Category: Medical

Palliative Care In Amyotrophic Lateral Sclerosis

Author : David Oliver (FRCGP.)
ISBN : 019173036X
Genre : Amyotrophic lateral sclerosis
File Size : 50.40 MB
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This volume provides an evidence-based guide to the care of people with ALS/MND, including, the control of symptoms, the psychosocial care of patients and their families, and care in bereavement.
Category: Amyotrophic lateral sclerosis

Palliative Care In Japan For Individuals With Amyotrophic Lateral Sclerosis

Author : Mitsuko Ushikubo
ISBN : OCLC:1154297733
Genre : Medicine
File Size : 76.66 MB
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Palliative care has not been focused on noncancer yet. Amyotrophic lateral sclerosis (ALS) is a fatal, rapid progressive, and intractable neurodegenerative disease. Individuals with advanced ALS cannot perform activities of daily living by themselves, but their mental awareness remains clear. Individuals with ALS experience various pain soon after diagnosis, and a multidisciplinary team approach is needed because their pain can become complicated Caring for individuals with ALS needs to both start and end with palliative care in the physical, psychological, social, and spiritual aspects. The Japanese Ministry of Health, Labour and Welfare enacted the Principles of Policy for Rare and Intractable Diseases (nanbyo), which were the first set of such principles to be established in the world. This chapter describes the palliative care in Japan, from the perspectives of nursing and nanbyo measures. Also, three unique characteristics of ALS care in Japan are mentioned: the high level of disagreement between patients and family; the high rate of ventilator use compared with Western countries; and the low consumption of morphine. Healthcare practitioners need to apply the notion of the total pain to provide palliative care to individuals with ALS and acknowledge the challenges of providing timely symptomatic management.
Category: Medicine

Palliative Care In Neurology

Author : Raymond Voltz
ISBN : 0198508433
Genre : Language Arts & Disciplines
File Size : 81.49 MB
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Palliative care is the duty of every neurologist: however, to date, this has not been a standard feature of neurological practice or training. This book helps define a new field, namely palliative care in neurology. It brings together all necessary information for neurologists caring for a patient with advance disease.
Category: Language Arts & Disciplines

Palliative Care E Book

Author : Linda L. Emanuel
ISBN : 9781437735970
Genre : Medical
File Size : 76.59 MB
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Find out all you need to know about providing high-quality care to patients with serious illnesses from the 2nd edition of Palliative Care: Core Skills and Clinical Competencies. Drs. Linda L. Emanuel and S. Lawrence Librach, leaders in the field, address the clinical, physical, psychological, cultural, and spiritual dimensions that are integral to the care of the whole patient. They give you a broad understanding of the core clinical skills and competencies needed to effectively approach patient assessment, care of special populations, symptom control, ethical issues, and more. Clearly written in a user-friendly, high-yield format, this resource is your ultimate guidebook to the burgeoning practice of palliative medicine. Improve your pain management and symptom management skills with a better understanding of best practices in palliative care. Quickly review specific treatment protocols for both malignant and non-malignant illnesses, including HIV/AIDS, heart failure, renal failure, pulmonary disease, and neurodegenerative disease. Better understand and manage the common and unique challenges associated with delivering palliative care in various social settings, such as the ICU, hospice, and the home; and to diverse populations, such as children, elders, and vulnerable members of society. Expand your knowledge of palliative care issues with new chapters on Veterans, Special Populations, Prognostication, Delirium, Working with Families, Wound Care, Home Care, and Dealing with Economic Hardship. Find the information you need quickly and easily with a templated, high-yield format.
Category: Medical

Amyotrophic Lateral Sclerosis

Author : Hiroshi Mitsumoto, MD
ISBN : 1935281194
Genre : Health & Fitness
File Size : 86.75 MB
Format : PDF
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ALS, also known as Lou Gehrig's disease, cannot be cured but it can be treated. A great deal can be done to treat the symptoms of ALS, to improve an individual's quality of life, and to help families, caregivers, and loved ones to cope with the disease. This extensively revised and rewritten new edition of the bestselling Amyotrophic Lateral Sclerosis: A Guide For Patients and Families addresses all of those needs, and brings up-to-date important information to those living with the reality of ALS. The book is completely revised throughout and contains NEW information on: Recently developed approaches to treating ALS symptoms Use of non-invasive ventilators Multidisciplinary team care New guidelines being developed by the American Academy of Neurology for patients with ALS The use of riluzole (Rilutek) to treat ALS Amyotrophic Lateral Sclerosis covers every aspect of the management of ALS, from clinical features of the disease, to diagnosis, to an overview of symptom management. Major sections deal with medical and rehabilitative management, living with ALS, managing advanced disease, end-of-life issues, and resources that can provide support and assistance in this time of need.
Category: Health & Fitness

Neurology Update

Author : Huw Morris
ISBN : 185775722X
Genre : Medical
File Size : 64.69 MB
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Provides reviews relating to neurology diagnosis and management in general medical and neurological practice. This anthology covers common neurological conditions including epilepsy, stroke, Parkinson's disease, encephalitis, and non-epileptic attack disorder. This is a useful resource for physicians involved in general medical intake.
Category: Medical

Palliative Care In Neurological Disease

Author : Judi Byrne
ISBN : 9781846192937
Genre : Medical
File Size : 59.8 MB
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The particular needs of people with progressive long-term neurological conditions - including Parkinson's Disease, Motor Neurone Disease (MND), Multiple Sclerosis (MS) and Huntington's disease - may make care delivery and planning the last stages of life.
Category: Medical

Grief And Bereavement In The Adult Palliative Care Setting

Author : E. Alessandra Strada
ISBN : 9780199768929
Genre : Medical
File Size : 77.34 MB
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For patients and family caregivers the journey through illness and transitions of care is characterized by a series of progressive physical and emotional losses. Grief reactions represent the natural response to those losses. Grief is defined by a constellation of physical, cognitive, emotional and spiritual manifestations, varying in length and severity. While grief reactions are common and expected responses to loss, they have the potential to cause significant suffering. And, while grief is not a disease, it can develop into a pathological process warranting specialized treatment. Additionally, some aspects of grief overlap with the symptoms of clinical depression and anxiety, making diagnosis difficult. Grief and Bereavement in the Adult Palliative Care Setting provides practical, evidence-based, and clinically effective approaches to understanding the multifaceted nature of grief and bereavement in patients with advanced illness and their caregivers. This handbook is an ideal tool for palliative care providers of various disciplines who provide direct clinical services to patients and family members. It assists clinicians in recognizing and identifying grief reactions as unique expressions of patients and caregivers' history and psychological functioning. Primary care physicians who provide care to patients and families will also find this practical assessment and treatment guide helpful. They will learn how to best support bereaved patients and caregivers when grief is uncomplicated, and when to choose more active interventions that may include appropriate referrals to mental health professionals.
Category: Medical

Amyotrophic Lateral Sclerosis Large Print 16pt

Author : Robert G. Miller
ISBN : 9781458756152
Genre : Health & Fitness
File Size : 90.58 MB
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ALS is not a curable disease, but it is a treatable one. Treatments are now available that can make a major difference in prolonging life and enhancing the quality of life for people with the disease, and there are treatments for many of the symptoms of ALS that can help ease its burden. Multidisciplinary teams in specialized ALS centers are providing top quality care and comprehensive rehabilitation for persons with ALS. In spite of the progressive nature of this disease and its clear tendency to shorten life, the momentum of research in this disease is expanding dramatically and numerous clinical trials are testing promising new therapies. Our understanding of the basic causes of ALS is expanding gradually. The substantial resources of patient advocacy groups such as the Amyotrophic Lateral Sclerosis Association and Muscular Dystrophy Association provide tremendous help and support for people with ALS and their families. Although the diagnosis of ALS can initially be devastating, the vast majority of people discovering new courage from within to battle this disease and live life with vigor and enthusiasm. The information in this book will prove useful to people with ALS and their families both in managing the disease and living within its limitations. ''
Category: Health & Fitness

Neuromuscular Disease Management And Rehabilitation Part Ii Specialty Care And Therapeutics An Issue Of Physical Medicine And Rehabilitation Clinics E Book

Author : Nanette C. Joyce
ISBN : 9781455753338
Genre : Medical
File Size : 41.94 MB
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Neuromuscular disease is a broad term that encompasses many diseases and ailments that either directly or indirectly impair the function of the body’s muscle system, via the nerves. This issue of PMR will provide an overview of current treatments and therapies for a variety of diseases. The GEs have gone through every issue published since 1998, and these 23 chapters will be meant to fill the numerous gaps in PMR’s coverage of the field over the past decade. The issue will include chapters on different treatment techniques, such as exercises, stretches, and nutrition. It will also provide chapters focusing on specific areas of the body, specific conditions, and an update on mobility technology for those with NMDs.
Category: Medical

Amyotrophic Lateral Sclerosis

Author : Dr. Deborah Gelinas
ISBN : 1934559067
Genre : Health & Fitness
File Size : 46.44 MB
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ALS is not a curable disease, but it is a treatable one. Treatments are now available that can make a major difference in prolonging life and enhancing the quality of life for people with the disease, and there are treatments for many of the symptoms of ALS that can help ease its burden.Multidisciplinary teams in specialized ALS centers are providing top quality care and comprehensive rehabilitation for persons with ALS. In spite of the progressive nature of this disease and its clear tendency to shorten life, the momentum of research in this disease is expanding dramatically and numerous clinical trials are testing promising new therapies. Our understanding of the basic causes of ALS is expanding gradually. The substantial resources of patient advocacy groups such as the Amyotrophic Lateral Sclerosis Association and Muscular Dystrophy Association provide tremendous help and support for people with ALS and their families. Although the diagnosis of ALS can initially be devastating, the vast majority of people discovering new courage from within to battle this disease and live life with vigor and enthusiasm. The information in this book will prove useful to people with ALS and their families both in managing the disease and living within its limitations.
Category: Health & Fitness

Physical Management For Neurological Conditions E Book

Author : Maria Stokes
ISBN : 9780702047121
Genre : Medical
File Size : 76.65 MB
Format : PDF, Mobi
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The third edition of this popular textbook - formerly Physical Management in Neurological Rehabilitation and now renamed Physical Management for Neurological Conditions - maintains its scientific and research base with extensive use of references and case studies. It is the only book for physiotherapists that offers a comprehensive overview of the basic principles of neurological rehabilitation, specific neurological / neuromuscular conditions and the related physiotherapy treatment approaches used. Important areas which feature throughout are discussed in relation to the different neurological conditions and include: a non-prescriptive, multidisciplinary, problem-solving approach to patient management involvement of the patient and carer in goal-setting and decision-making (client-centred practice) use of outcome measures to evaluate the effects of treatment in everyday practice use of case studies to illustrate clinical practice scientific evidence of treatment effectiveness Additional specialist editor – Dr Emma Stack Refined content but with the inclusion of 4 brand new chapters: an introductory chapter on rehabilitation in practice one on respiratory management and two covering self management and falls under the section entitled Skill Acquisition and Learning 11 new expert contributors join the reduced contributor team of 31
Category: Medical

The Massage Therapist S Guide To Pain Management E Book

Author : Sandy Fritz
ISBN : 9780702050985
Genre : Medical
File Size : 84.26 MB
Format : PDF, Docs
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Edited by Leon Chaitow and Sandy Fritz, this clearly written and fully illustrated volume offers practical, comprehensive coverage of the subject area accompanied by a range of video clips via www.chaitowonline.com which presents the massage therapy techniques involved. Covering all aspects of client assessment, treatment planning and current therapeutic modalities – including adjunctive treatments - this new book is suitable for massage therapists worldwide. Offers practical, validated, and clinically relevant information to all therapists working in the field Edited by two acknowledged experts in the field to complement each other’s approach and understanding of the issues involved Abundant use of pull-out boxes, line artwork, photographs and tables facilitates ease of understanding Contains an abundance of clinical cases to ensure full understanding of the topics explored Accompanying website - www.chaitowonline.com - which presents film clips of the massage therapy techniques involved
Category: Medical

Motor Neuron Disease

Author : Kevin Talbot
ISBN : 9780199547364
Genre : Medical
File Size : 45.73 MB
Format : PDF, ePub, Docs
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Written and designed to provide comprehensive, easily accessible advice for all healthcare professionals involved in the care of patients with this challenging condition, this book addresses the entire care pathway from presentation to diagnosis to symptom management and end of life issues.
Category: Medical

Respiratory Management Of Als

Author : Lee Guion
ISBN : 0763755451
Genre : Medical
File Size : 30.63 MB
Format : PDF, Kindle
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The first comprehensive textbook on the assessment and management of respiratory symptoms in ALS and other motor neuron diseases! Respiratory Management of ALS: Amyotrophic Lateral Sclerosis brings together the latest research, expert opinions, and treatment options for respiratory symptom management. It provides a detailed, step-by-step approach to assessment of upper and lower airway structures and how motor neuron loss impairs function. Treatment options emphasize symptom management and enhanced quality of life. Palliative care, end-of-life decision making, and long term mechanical ventilat
Category: Medical

Ethical And Legal Issues In Neurology

Author : Stefan Lorenzl
ISBN : 9780128080726
Genre : Medical
File Size : 21.44 MB
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Patients with chronic neurologic disorders suffer from the burden of disease progression without the hope for a cure. Therefore, symptom management and palliative care approaches should be included from the beginning of the illness. Palliative care aims at improving a patient’s quality of life by alleviating suffering due to physical, psychosocial, and spiritual factors. Since no curative and only limited life-prolonging treatment options are available for most chronic neurologic disorders, a palliative care approach can help to create a treatment plan that considers all aspects of the disease. We have provided palliative care approaches for the most common neurodegenerative disorders like dementia, multiple sclerosis, Parkinson’s disease, and amyotrophic lateral sclerosis. A palliative approach to neurologic disorders does not simply mean limiting treatment and focusing on pain. Instead, the whole unit of care, consisting of the patient, relatives, and caregivers, should be perceived with all their needs.
Category: Medical

The Syringe Driver

Author : Andrew Dickman
ISBN : 0198515502
Genre : Medical
File Size : 24.37 MB
Format : PDF, Kindle
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"Health care professionals working in palliative care will find this highly practical book provides a wealth of information about drug compatibilities and the use of the syringe driver. The reader is presented with an overview of syringe drivers and continuous subcutaneous infusions followed by referenced information about most drugs that are likely to be encountered, information about symptom control, concentrating specifically on the use of the syringe driver and an extensive range of compatability tables." "The Syringe Driver will prove to be an essential source of information for doctors, nurses and pharmacists who work in palliative medicine."--BOOK JACKET.
Category: Medical

Motor Neuron Disease In Adults

Author : Mark Bromberg
ISBN : 9780190202262
Genre : Medical
File Size : 68.18 MB
Format : PDF, ePub, Docs
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Motor Neuron Disease in Adults reviews new information as it applies to all aspects of motor neuron disease (ALS, PLS, PMA). The choice of articles is for those that use evidence-based methods to ensure that the new information is solid and advances the topic or issue. The book can be used by anyone who provides any type of care to ALS patients. In particular, neurologists will find the latest information on diagnosis and management, as well as new information on genetics and frontotemporal lobe involvement. Allied health providers will find useful information for their discipline. Patients will also find both specific and general information to help understand what they are experiencing and how to help manage their symptoms.
Category: Medical