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The Governance Of Genetic Information

Author : Heather Widdows
ISBN : 9780521509916
Genre : Law
File Size : 21.67 MB
Format : PDF, Kindle
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This volume suggests alternative ethical frameworks and models of regulation relating to the governance of genetic information.
Category: Law

Biobank Governance

Author : Julia Berdin
ISBN : 9783845282640
Genre : Law
File Size : 40.99 MB
Format : PDF, ePub
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Biobanken, in denen international und im großen Stil menschliche Körpersubstanzen und persönliche Daten zu Forschungszwecken gesammelt werden, bergen ein enormes Potenzial für die sich exponentiell entwickelnde medizinische Forschung. Die gespendeten Proben und Daten können jedoch viel über den einzelnen Spender offenbaren und diesen und mit ihm verbundene Personen Diskriminierungsrisiken aussetzen. Die Arbeit stellt sich insbesondere der Frage, ob eine traditionell erforderliche individuelle Einwilligung des Spenders in zu diesem Zeitpunkt jedoch noch unbestimmte zukünftige Forschungszwecke ausreichen kann oder ob und wie der Spender weitergehend an Entscheidungen das Schicksal seiner sensiblen Proben und Daten betreffend beteiligt werden kann und muss. Dabei werden insbesondere innovative Trust-Modelle auf ihr Potenzial im deutschen Rechtsraum hin untersucht.
Category: Law

Medical Law And Ethics

Author : Jonathan Herring
ISBN : 9780198702269
Genre : Law
File Size : 51.39 MB
Format : PDF, ePub
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Medical Law and Ethics covers not only the core legal principles, key cases, and statutes that govern medical law, but also explores the key ethical debates and dilemmas that exist in the field to ensure that the law is firmly embedded within its context. Carefully constructed features highlight these debates, drawing out the European angles, religious beliefs, and feminist perspectives which influence legal regulations. Other features such as "a shock to the system", "public opinion" and "reality check" introduce further sociological aspects, contributing to the lively and engaging manner with which the subject is approached. Online Resource Centre This book is accompanied by an Online Resource Centre which includes: * Bibliography and further reading * Links to key cases * Author video podcast * Web links * Links to key sites with information on medical law and ethics
Category: Law

Medical Law A Very Short Introduction

Author : Charles Foster
ISBN : 9780191636011
Genre : Law
File Size : 55.50 MB
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Medical law is concerned with our bodies, and what happens to them during and after our lives. When things go wrong with our bodies, we want to know what our rights are, and what governs the conduct of the clinicians into whose hands we put our lives and limbs. Dealing with matters of life and death, it can therefore have a fundamental impact on medical practice. Headlines in the media often involve the core issues of medical law - organ transplantation, abortion, withdrawal of treatment, euthanasia, confidentiality, research on humans - these are topics that affect us all. Headlines can misrepresent, however. In order to fully understand the issues and their relevance, we have to delve into the cases and into the principles behind them. In this highly readable Very Short Introduction, Charles Foster explores different examples to illustrate the key problems and principles of medical law. ABOUT THE SERIES: The Very Short Introductions series from Oxford University Press contains hundreds of titles in almost every subject area. These pocket-sized books are the perfect way to get ahead in a new subject quickly. Our expert authors combine facts, analysis, perspective, new ideas, and enthusiasm to make interesting and challenging topics highly readable.
Category: Law

The Connected Self

Author : Heather Widdows
ISBN : 9781107008601
Genre : Law
File Size : 89.37 MB
Format : PDF
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Heather Widdows suggests new ethical frameworks for genetic governance, to replace those that offer little protection and permit significant injustice.
Category: Law

The Ethics And Governance Of Human Genetic Databases

Author : Matti Häyry
ISBN : 9781139464048
Genre : Law
File Size : 22.41 MB
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The Medical Biobank of Umeå in Sweden, deCODE's Health Sector Database in Iceland, the Estonian Genome Project and the UK Biobank contain health data and genetic data from large populations. Some include genealogical or lifestyle information. They are resources for research in human genetics and medicine, exploring interaction between genes, lifestyle, environmental factors and health and diseases. The collection, storage and use of this data raise ethical, legal and social issues. In this book, first published in 2007, bioethics scholars examine whether existing ethical frameworks and social policies reflect people's concerns, and how they may need to change in light of new scientific and technological developments. The ethical issues of social justice, genetic discrimination, informational privacy, trust in science and consent to participation in database research are analyzed, whilst an empirical survey, conducted in the four countries, demonstrates public views of privacy and related moral values in the context of human genetic databases.
Category: Law

Genetic Governance

Author : Robin Bunton
ISBN : 9781134258895
Genre : Social Science
File Size : 57.96 MB
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Ethical and practical issues around genetic research are of major international concern, both in academia and in the public domain. Questions concerning what interventions are possible and appropriate with the increasing amount of genetic information available, challenge our understandings of ourselves, our health and wellbeing, and the role of medical ethics, public health, surveillance and risk. However there has been little reflection on the socio-political effects of this new genetic knowledge and the changes in practice that are currently impacting on our lives. Containing contributions from key international researchers, this book examines the broader issues of genetic debates and looks at how prediction and risk assessment is being changed in the arenas of health, medicine and reproduction, bringing new insight on the dangers of surveillance, regulation and increased inequality. Developed out of the Taylor and Francis journal Critical Public Health, the book considers the implications of developments in genetics for contemporary liberal governance, as well as for the future of healthcare and public health.
Category: Social Science

New Challenges For Biobanks

Author : Kris Dierickx
ISBN : 9050959741
Genre : Law
File Size : 63.85 MB
Format : PDF
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The book is a collection of papers presented during an international conference, held in Leuven May 18-20, 2009, organized by the Centre for Biomedical Ethics and Law of the Catholic University of Leuven and the GeneBanC project.
Category: Law

Manual For Research Ethics Committees

Author : Sue Eckstein
ISBN : 0521810043
Genre : Business & Economics
File Size : 62.62 MB
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The sixth edition of the Manual for Research Ethics Committees was first published in 2003, and is a unique compilation of legal and ethical guidance which will prove useful for members of research ethics committees, researchers involved in research with humans, members of the pharmaceutical industry and students of law, medicine, ethics and philosophy.
Category: Business & Economics