THE GOVERNANCE OF GENETIC INFORMATION WHO DECIDES CAMBRIDGE LAW MEDICINE AND ETHICS

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The Governance Of Genetic Information

Author : Heather Widdows
ISBN : 9780521509916
Genre : Law
File Size : 87.25 MB
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This volume suggests alternative ethical frameworks and models of regulation relating to the governance of genetic information.
Category: Law

The Ethics And Governance Of Human Genetic Databases

Author : Matti Häyry
ISBN : 9781139464048
Genre : Law
File Size : 46.13 MB
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The Medical Biobank of Umeå in Sweden, deCODE's Health Sector Database in Iceland, the Estonian Genome Project and the UK Biobank contain health data and genetic data from large populations. Some include genealogical or lifestyle information. They are resources for research in human genetics and medicine, exploring interaction between genes, lifestyle, environmental factors and health and diseases. The collection, storage and use of this data raise ethical, legal and social issues. In this book, first published in 2007, bioethics scholars examine whether existing ethical frameworks and social policies reflect people's concerns, and how they may need to change in light of new scientific and technological developments. The ethical issues of social justice, genetic discrimination, informational privacy, trust in science and consent to participation in database research are analyzed, whilst an empirical survey, conducted in the four countries, demonstrates public views of privacy and related moral values in the context of human genetic databases.
Category: Law

The Connected Self

Author : Heather Widdows
ISBN : 9781107008601
Genre : Law
File Size : 45.47 MB
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Heather Widdows suggests new ethical frameworks for genetic governance, to replace those that offer little protection and permit significant injustice.
Category: Law

Medical Law A Very Short Introduction

Author : Charles Foster
ISBN : 9780191636011
Genre : Law
File Size : 87.49 MB
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Medical law is concerned with our bodies, and what happens to them during and after our lives. When things go wrong with our bodies, we want to know what our rights are, and what governs the conduct of the clinicians into whose hands we put our lives and limbs. Dealing with matters of life and death, it can therefore have a fundamental impact on medical practice. Headlines in the media often involve the core issues of medical law - organ transplantation, abortion, withdrawal of treatment, euthanasia, confidentiality, research on humans - these are topics that affect us all. Headlines can misrepresent, however. In order to fully understand the issues and their relevance, we have to delve into the cases and into the principles behind them. In this highly readable Very Short Introduction, Charles Foster explores different examples to illustrate the key problems and principles of medical law. ABOUT THE SERIES: The Very Short Introductions series from Oxford University Press contains hundreds of titles in almost every subject area. These pocket-sized books are the perfect way to get ahead in a new subject quickly. Our expert authors combine facts, analysis, perspective, new ideas, and enthusiasm to make interesting and challenging topics highly readable.
Category: Law

Biobanks And Tissue Research

Author : Christian Lenk
ISBN : 9400716737
Genre : Medical
File Size : 68.40 MB
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The research field of biobanks and tissue research is highly promising. Many projects around the globe are involved in the collection of human tissue and health data for research purposes. These initiatives are driven by the perspective of decisive breakthroughs in the knowledge of the genetic pathways involved in widespread diseases. However, there are considerable ethical and legal challenges to be considered as well. These challenges encompass the use of body material for research purposes, the misuse of genetic and other health data by third parties, trust in science and medicine, concerns regarding privacy, use of genetic data for forensic applications by the state and the police, and regulatory issues. This volume is divided into three parts: the inclusion of the public, the rights of donors and patients, examples and recommendations for the future of tissue research. It presents a comprehensive overview of the most important topics in the field by renowned scholars in medical ethics and biolaw.
Category: Medical

Encyclopedia Of Genetics

Author : Eric C. R. Reeve
ISBN : 1884964346
Genre : Science
File Size : 67.76 MB
Format : PDF
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"Discoveries in genetics are reported daily. Written for academic audiences and well-informed generalists, this authoritative and impressivly up-to-date 125-entry encyclopedia covers not only the basics and principles of genetics, but details the role ofgenetics in current issues, such as diseases, disorders, aging, sex, conservation, mapping, gene therapy, and food and nutrition."--"Outstanding Reference Sources," American Libraries, May 2002.
Category: Science

Genetic Privacy

Author : Graeme Laurie
ISBN : 1139431536
Genre : Law
File Size : 38.44 MB
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The phenomenon of the New Genetics raises complex social problems, particularly those of privacy. This book offers ethical and legal perspectives on the questions of a right to know and not to know genetic information from the standpoint of individuals, their relatives, employers, insurers and the state. Graeme Laurie provides a unique definition of privacy, including a concept of property rights in the person, and argues for stronger legal protection of privacy in the shadow of developments in human genetics. He challenges the role and the limits of established principles in medical law and ethics, including respect for patient autonomy and confidentiality. This book will interest lawyers, philosophers and doctors concerned both with genetic information and issues of privacy; it will also interest genetic counsellors, researchers, and policy makers worldwide for its practical stance on dilemmas in modern genetic medicine.
Category: Law

Self Ownership Property Rights And The Human Body

Author : Muireann Quigley
ISBN : 9781108570466
Genre : Law
File Size : 74.68 MB
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How ought the law to deal with novel challenges regarding the use and control of human biomaterials? As it stands the law is ill-equipped to deal with these. Quigley argues that advancing biotechnology means that the law must confront and move boundaries which it has constructed; in particular, those which delineate property from non-property in relation to biomaterials. Drawing together often disparate strands of property discourse, she offers a philosophical and legal re-analysis of the law in relation to property in the body and biomaterials. She advances a new defence, underpinned by self-ownership, of the position that persons ought to be seen as the prima facie holders of property rights in their separated biomaterials. This book will appeal to those interested in medical and property law, philosophy, bioethics, and health policy amongst others.
Category: Law

Solidarity And Justice In Health And Social Care

Author : Ruud ter Meulen
ISBN : 9781107069800
Genre : History
File Size : 41.87 MB
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This book presents a new view on the concept of solidarity and explains how it complements justice in health and social care.
Category: History