THE GOVERNANCE OF GENETIC INFORMATION WHO DECIDES CAMBRIDGE LAW MEDICINE AND ETHICS

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The Governance Of Genetic Information

Author : Heather Widdows
ISBN : 9780521509916
Genre : Law
File Size : 87.48 MB
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This volume suggests alternative ethical frameworks and models of regulation relating to the governance of genetic information.
Category: Law

The Ethics And Governance Of Human Genetic Databases

Author : Matti Häyry
ISBN : 9781139464048
Genre : Law
File Size : 46.49 MB
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The Medical Biobank of Umeå in Sweden, deCODE's Health Sector Database in Iceland, the Estonian Genome Project and the UK Biobank contain health data and genetic data from large populations. Some include genealogical or lifestyle information. They are resources for research in human genetics and medicine, exploring interaction between genes, lifestyle, environmental factors and health and diseases. The collection, storage and use of this data raise ethical, legal and social issues. In this book, first published in 2007, bioethics scholars examine whether existing ethical frameworks and social policies reflect people's concerns, and how they may need to change in light of new scientific and technological developments. The ethical issues of social justice, genetic discrimination, informational privacy, trust in science and consent to participation in database research are analyzed, whilst an empirical survey, conducted in the four countries, demonstrates public views of privacy and related moral values in the context of human genetic databases.
Category: Law

The Connected Self

Author : Heather Widdows
ISBN : 9781107008601
Genre : Law
File Size : 32.92 MB
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Heather Widdows suggests new ethical frameworks for genetic governance, to replace those that offer little protection and permit significant injustice.
Category: Law

Medical Law A Very Short Introduction

Author : Charles Foster
ISBN : 9780191636011
Genre : Law
File Size : 53.96 MB
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Medical law is concerned with our bodies, and what happens to them during and after our lives. When things go wrong with our bodies, we want to know what our rights are, and what governs the conduct of the clinicians into whose hands we put our lives and limbs. Dealing with matters of life and death, it can therefore have a fundamental impact on medical practice. Headlines in the media often involve the core issues of medical law - organ transplantation, abortion, withdrawal of treatment, euthanasia, confidentiality, research on humans - these are topics that affect us all. Headlines can misrepresent, however. In order to fully understand the issues and their relevance, we have to delve into the cases and into the principles behind them. In this highly readable Very Short Introduction, Charles Foster explores different examples to illustrate the key problems and principles of medical law. ABOUT THE SERIES: The Very Short Introductions series from Oxford University Press contains hundreds of titles in almost every subject area. These pocket-sized books are the perfect way to get ahead in a new subject quickly. Our expert authors combine facts, analysis, perspective, new ideas, and enthusiasm to make interesting and challenging topics highly readable.
Category: Law

Biobanks And Tissue Research

Author : Christian Lenk
ISBN : 9400716737
Genre : Medical
File Size : 51.27 MB
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The research field of biobanks and tissue research is highly promising. Many projects around the globe are involved in the collection of human tissue and health data for research purposes. These initiatives are driven by the perspective of decisive breakthroughs in the knowledge of the genetic pathways involved in widespread diseases. However, there are considerable ethical and legal challenges to be considered as well. These challenges encompass the use of body material for research purposes, the misuse of genetic and other health data by third parties, trust in science and medicine, concerns regarding privacy, use of genetic data for forensic applications by the state and the police, and regulatory issues. This volume is divided into three parts: the inclusion of the public, the rights of donors and patients, examples and recommendations for the future of tissue research. It presents a comprehensive overview of the most important topics in the field by renowned scholars in medical ethics and biolaw.
Category: Medical

Self Ownership Property Rights And The Human Body

Author : Muireann Quigley
ISBN : 9781108570466
Genre : Law
File Size : 85.66 MB
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How ought the law to deal with novel challenges regarding the use and control of human biomaterials? As it stands the law is ill-equipped to deal with these. Quigley argues that advancing biotechnology means that the law must confront and move boundaries which it has constructed; in particular, those which delineate property from non-property in relation to biomaterials. Drawing together often disparate strands of property discourse, she offers a philosophical and legal re-analysis of the law in relation to property in the body and biomaterials. She advances a new defence, underpinned by self-ownership, of the position that persons ought to be seen as the prima facie holders of property rights in their separated biomaterials. This book will appeal to those interested in medical and property law, philosophy, bioethics, and health policy amongst others.
Category: Law

The Sorting Society

Author : Loane Skene
ISBN : 9780521689847
Genre : Law
File Size : 31.87 MB
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The 'sorting society' expresses what many people believe will be the outcome of advances in genetic technology: a society in which many characteristics of children are no longer the result of genetic chance but of deliberate selection. This book focuses on the ethical, legal and social issues raised by this technology. Is the prospect of a sorting society something that we should welcome or deplore? Do concerns about how parents or societies might exercise the choice given to them by genetic technology give us reason to restrain its creation or use? Would a sorting society increase the freedom of parents and the well being of children, or would it undermine values that are central to a liberal democratic society? These are questions of the most profound significance, bearing on the world in which our children, grandchildren, and great-grandchildren will live. This is a must-read for everyone interested in the forefront of genetics and bioethics.
Category: Law

The Cambridge Textbook Of Bioethics

Author : Peter A. Singer
ISBN : 9781139468213
Genre : Medical
File Size : 62.33 MB
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Medicine and health care generate many bioethical problems and dilemmas that are of great academic, professional and public interest. This comprehensive resource is designed as a succinct yet authoritative text and reference for clinicians, bioethicists, and advanced students seeking a better understanding of ethics problems in the clinical setting. Each chapter illustrates an ethical problem that might be encountered in everyday practice; defines the concepts at issue; examines their implications from the perspectives of ethics, law and policy; and then provides a practical resolution. There are 10 key sections presenting the most vital topics and clinically relevant areas of modern bioethics. International, interdisciplinary authorship and cross-cultural orientation ensure suitability for a worldwide audience. This book will assist all clinicians in making well-reasoned and defensible decisions by developing their awareness of ethical considerations and teaching the analytical skills to deal with them effectively.
Category: Medical

Encyclopedia Of Genetics

Author : Eric C. R. Reeve
ISBN : 1884964346
Genre : Science
File Size : 53.70 MB
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"Discoveries in genetics are reported daily. Written for academic audiences and well-informed generalists, this authoritative and impressivly up-to-date 125-entry encyclopedia covers not only the basics and principles of genetics, but details the role ofgenetics in current issues, such as diseases, disorders, aging, sex, conservation, mapping, gene therapy, and food and nutrition."--"Outstanding Reference Sources," American Libraries, May 2002.
Category: Science