PALLIATIVE CARE THE 400 YEAR QUEST FOR A GOOD DEATH

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Palliative Care

Author : Harold Y. Vanderpool
ISBN : 9781476619712
Genre : Health & Fitness
File Size : 50.5 MB
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The long history of medical care for the dying has largely been neglected. It began in 1605 when physicians were challenged to enable persons to die peacefully. Today it includes palliation of oppressive symptoms, emotional and psychological care, and respect for the wishes and cultural backgrounds of patients and families. Especially since the 1990s, it embraces symptom-easing palliation for patients with severe life-limiting and chronic illnesses. Providing a detailed picture of contemporary palliative care, this book chronicles four centuries of the quest for a good death, covering the fight against futile end-of-life treatments, the history of life-extending treatments and technologies, the roles of nurses, the liberation of the dying from isolation in hospitals and hard-won victories to secure patients’ right to choose.
Category: Health & Fitness

A History Of Palliative Care 1500 1970

Author : Michael Stolberg
ISBN : 9783319541785
Genre : Medical
File Size : 66.62 MB
Format : PDF
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This book on the history of palliative care, 1500-1970 traces the historical roots of modern palliative care in Europe to the rise of the hospice movement in the 1960s. The author discusses largely forgotten premodern concepts like cura palliativa and euthanasia medica and describes, how patients and physicians experienced and dealt with terminal illness. He traces the origins of hospitals for incurable and dying patients and follows the long history of ethical debates on issues like truth-telling and the intentional shortening of the dying patients’ lives and the controversies they sparked between physicians and patients. An eye opener for anyone interested in the history of ethical decision making regarding terminal care of critically ill patients.
Category: Medical

The Best Care Possible

Author : Ira Byock
ISBN : 9781583335123
Genre : Medical
File Size : 90.31 MB
Format : PDF, ePub, Docs
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Dr. Byock, one of the foremost palliative care physicians in the country, argues that the way we die represents a national crisis. Though the vast majority of Americans would prefer to die peacefully, at home, many will spend their last days in a disease treatment system ruled by high-tech procedures and a philosophy to 'fight disease and illness at all costs.' Dr. Byock, puts a human face on the issue by telling richly moving stories - at once heartwrenching and uplifting - of people coping with the most difficult moments in their lives. As the pace of health care reform accelerates, he shows what truly excellent care can look like, and how wise and skilful doctors, nurses, and clinical teams can profoundly shape families' experiences of illness, caregiving, and loss. Told through page-turning life-or-death medical drama, The Best Care Possibleis a compelling and passionate meditation on medicine and ethics. It has the power to lead a new national conversation. 'Dr. Byock's mission is to help everyone . . . find meaning, dignity, and peace in these final months of life.' Prevention magazine'In this strikingly important book, Byock presents an agenda for end-of-life care that should serve as an ideal template on which to build out best hopes for the final days of those we love and of ourselves - and a corrective for our society.' Sherwin B. Nuland, MD, Yale Interdisciplinary Center for Bioethics; author of How We Die
Category: Medical

At Peace

Author : Samuel Harrington
ISBN : 9781478917434
Genre : Self-Help
File Size : 42.62 MB
Format : PDF, ePub
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The authoritative, informative, and reassuring guide on end-of-life care for our aging population. Most people say they would like to die quietly at home. But overly aggressive medical advice, coupled with an unrealistic sense of invincibility or overconfidence in our health-care system, results in the majority of elderly patients misguidedly dying in institutions. Many undergo painful procedures instead of having the better and more peaceful death they deserve. AT PEACE outlines specific active and passive steps that older patients and their health-care proxies can take to ensure loved ones live their last days comfortably at home and/or in hospice when further aggressive care is inappropriate. Through Dr. Samuel Harrington's own experience with the aging and deaths of his parents and of working with patients, he describes the terminal patterns of the six most common chronic diseases; how to recognize a terminal diagnosis even when the doctor is not clear about it; how to have the hard conversation about end-of-life wishes; how to minimize painful treatments; when to seek hospice care; and how to deal with dementia and other special issues. Informed by more than thirty years of clinical practice, Dr. Harrington came to understand that the American health-care system wasn't designed to treat the aging population with care and compassion. His work as a hospice trustee and later as a hospital trustee drove his passion for helping patients make appropriate end-of-life decisions.
Category: Self-Help

End Of Life

Author : Lynn Keegan, PhD, RN, AHN-BC, FAAN
ISBN : 0826107605
Genre : Medical
File Size : 54.67 MB
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2011 AJN Book of the Year Winner in both Gerontologic Nursing and Hospice and Palliative Care! "The book is easy to read and is essential to all who work and care for those at the end of life." --David Shields, RN, MSN, QTTT Assistant Professor of Nursing Capital University "The book is thought provoking and, if you are like me, you will be assessing (consciously or subconsciously) how good you or your service are at providing holistic care around the time of death. It deserves to be widely read and I hope it starts many a conversation." IAHPC Newsletter "[This book] is a gem. It is a rare balance of an interesting read with an incredible integration of factual information. I intend to share it in my long term care circles...A wonderful contribution!" Charlotte Eliopoulos,RN, MPH, PhD Executive Director American Association for Long Term Care Nursing "Every once in a long while a short, succinct book comes along that awakens our senses and motivates us to action. [This] is one such book. It cuts right to the chase to offer a new, innovative change for an old, outmoded rite of passage." Barbara Dossey, PhD, RN, AHN-BC, FAAN Co-Director, Nightingale Initiative for Global Health, Canada and Virginia Director, Holistic Nursing Consultants, New Mexico (From the Foreword) This professional clinical guide presents nursing administrators and nurses in acute care agencies, nursing homes, hospice, and palliative care settings with detailed implementation strategies for accommodating dying persons and their loved ones as they make the transition from physical life. It presents the need for and the development of the concept: Golden Room concept: a place for dying that facilitates a dignified, peaceful, and profound experience for dying persons and their loved ones. This book presents a practical solution on multiple levels that will benefit all involved-patient, family, nurses, administrators, policy makers, and insurance companies. It presents the theoretical frameworks for end-of-life care and how the Golden Room concept fits into these frameworks. Published in partnership with the Watson Caring Science Institute, this unique resource: Advocates the use of Golden Rooms, which provide dignified, private, and safe settings for death and dying Presents various cases that illustrate the need for a dignified death, as well as strategies on how to provide for this dignified death Provides questions of concern after each case scenario, suitable for class discussion or personal reflection Offers cost-effective end-of-life solutions for families, the medical establishment, and insurance companies
Category: Medical

Spiritual Care At The End Of Life

Author : Steve Nolan
ISBN : 0857005138
Genre : Body, Mind & Spirit
File Size : 48.21 MB
Format : PDF, Kindle
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Chaplains in healthcare settings offer patients spiritual care that involves companionship, counselling and maintaining hope. This is particularly important at the point where a patient has run out of treatment possibilities. This book reflects creatively on the work that chaplains do with people who are dying and the unique quality of the relationship that palliative care professionals construct with patients at the end of life. Based on qualitative research with practising palliative care chaplains, Spiritual Care at the End of Life explores the nature of hope in its different forms at different stages of terminal illness, and asks how chaplains can help dying people to be hopeful even when facing the inevitability of their death. The book identifies key moments in this relationship, from the person's initial reaction to the chaplain, to the chaplain becoming an accompanying presence and creating the potential to provide comfort, strength and "hope in the present". This thoughtful and inquisitive book investigates the underlying theory that spiritual care is rooted in relationship. It has implications for practice in the work of chaplains, counsellors and all healthcare professionals supporting people who are dying.
Category: Body, Mind & Spirit

Knocking On Heaven S Door

Author : Katy Butler
ISBN : 9781451641998
Genre : Biography & Autobiography
File Size : 58.85 MB
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In this visionary memoir, based on a groundbreaking New York Times Magazine story, award-winning journalist Katy Butler ponders her parents’ desires for “Good Deaths” and the forces within medicine that stood in the way. Katy Butler was living thousands of miles from her vigorous and self-reliant parents when the call came: a crippling stroke had left her proud seventy-nine-year-old father unable to fasten a belt or complete a sentence. Tragedy at first drew the family closer: her mother devoted herself to caregiving, and Butler joined the twenty-four million Americans helping shepherd parents through their final declines. Then doctors outfitted her father with a pacemaker, keeping his heart going but doing nothing to prevent his six-year slide into dementia, near-blindness, and misery. When he told his exhausted wife, “I’m living too long,” mother and daughter were forced to confront a series of wrenching moral questions. When does death stop being a curse and become a blessing? Where is the line between saving a life and prolonging a dying? When do you say to a doctor, “Let my loved one go?” When doctors refused to disable the pacemaker, condemning her father to a prolonged and agonizing death, Butler set out to understand why. Her quest had barely begun when her mother took another path. Faced with her own grave illness, she rebelled against her doctors, refused open-heart surgery, and met death head-on. With a reporter’s skill and a daughter’s love, Butler explores what happens when our terror of death collides with the technological imperatives of medicine. Her provocative thesis is that modern medicine, in its pursuit of maximum longevity, often creates more suffering than it prevents. This revolutionary blend of memoir and investigative reporting lays bare the tangled web of technology, medicine, and commerce that dying has become. And it chronicles the rise of Slow Medicine, a new movement trying to reclaim the “Good Deaths” our ancestors prized. Knocking on Heaven’s Door is a map through the labyrinth of a broken medical system. It will inspire the difficult conversations we need to have with loved ones as it illuminates the path to a better way of death.
Category: Biography & Autobiography

Five Days At Memorial

Author : Sheri Fink
ISBN : 9780307718976
Genre : Medical
File Size : 71.5 MB
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A Pulitzer Prize-winning doctor, reporter and author of War Hospital reconstructs five days at Memorial Medical Center after Hurricane Katrina destroyed its generators to reveal how caregivers were forced to make life-and-death decisions without essential resources. Reprint. A best-selling book. On the NYT list of 10 Best Books of 2013.
Category: Medical

Awake At The Bedside

Author : Koshin Paley Ellison
ISBN : 9781614291190
Genre : Family & Relationships
File Size : 71.26 MB
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This book isn’t about dying. It’s about life and what life has to teach us. It’s about caring and what giving care really means. In Awake at the Bedside, pioneers of palliative and end-of-life care as well as doctors, chaplains, caregivers and even poets offer wisdom that will challenge, uplift, comfort—and change the way we think about death. Equal parts instruction manual and spiritual testimony, it includes specific instructions and personal accounts to inspire, counsel, and teach. An indispensable resource for anyone involved in hospice work or caregiving of any kind. Contributors include Anyen Rinpoche, Coleman Barks, Craig D. Blinderman, Bhikkhu Bodhi, Joshua Bright, Ira Byock, Robert Chodo Campbell, Rafael Campo, Ajahn Chah, Ram Dass, Kirsten DeLeo, Issan Dorsey, Mark Doty, Norman Fischer, Nick Flynn, Gil Fronsdal, Joseph Goldstein, Shodo Harada Roshi, Tony Hoagland, Marie Howe, Fernando Kawai, Michael Kearney, Elisabeth Kubler-Ross, Stanley Kunitz, Stephen and Ondrea Levine, Judy Lief, Betsy MacGregor, Diane E. Meier, W. S. Merwin, Naomi Shihab Nye, Frank Ostaseski, Rachel Naomi Remen, Larry Rosenberg, Rumi, Cicely Saunders, Senryu, Jason Shinder, Derek Walcott, Radhule B. Weininger.
Category: Family & Relationships

Modern Death

Author : Haider Warraich
ISBN : 9780715652404
Genre : Medical
File Size : 54.30 MB
Format : PDF, Kindle
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Nothing is more certain in life than death. Yet recent advances in medicine and technology have dramatically increased our life expectancy, and everything about when, where, how and why we die has changed. The result is that dying is today a more prolonged and harrowing experience than ever before. In Modern Death, the physician and clinical researcher Haider Warraich draws on his expert personal experience as well as on history, culture, theology and legal theory, to tackle important ethical questions that go right to the heart of what it is to be human. He reveals what dying really means in today’s medical industrial complex, discusses the ethics of patient proxies, living wills and the right to die, and argues in favour of giving terminally ill patients the right to physician-assisted death. Written by an insightful, new voice in the conversation about death and dying, Modern Death is a heartfelt and inspiring book offering an unabashedly honest perspective, exploring how we can and must do better by the ones we love.
Category: Medical