COMPARATIVE ISSUES IN THE GOVERNANCE OF RESEARCH BIOBANKS PROPERTY PRIVACY INTELLECTUAL PROPERTY AND THE ROLE OF TECHNOLOGY

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Comparative Issues In The Governance Of Research Biobanks

Author : Giovanni Pascuzzi
ISBN : 9783642331169
Genre : Law
File Size : 57.53 MB
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In the last few years, the boom in biobanking has prompted a lively debate on a host of interrelated legal issues, such as the Gordian knot of the ownership of biological materials, as well as privacy concerns. The latter are due to the difficulty of accepting that biological samples must be completely anonymous without making it practically impossible to exploit their information potential. The issues also include the delicate role and the changing content of the donor’s “informed consent” as the main legal tool that may serve to link the privacy and property interests of donors with the research interests and the set of principles that should be at the core of the biobanking practice. Lastly, the IP issues and the patentability of biological samples as well as the protection of databases storing genetic information obtained from the samples are covered. Collecting eighteen essays written by eminent scholars from Italy, the US, the UK and Canada, this book provides new solutions to these problems. From a comparative viewpoint, it explores the extent to which digital technology may assist in tackling the numerous regulatory issues raised by the practice of biobanking for research purposes. These issues may be considered and analyzed under the traditional paradigms of Property, Privacy, Informed Consent and Intellectual Property.
Category: Law

Biobank Governance

Author : Julia Berdin
ISBN : 9783845282640
Genre : Law
File Size : 83.10 MB
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Biobanken, in denen international und im großen Stil menschliche Körpersubstanzen und persönliche Daten zu Forschungszwecken gesammelt werden, bergen ein enormes Potenzial für die sich exponentiell entwickelnde medizinische Forschung. Die gespendeten Proben und Daten können jedoch viel über den einzelnen Spender offenbaren und diesen und mit ihm verbundene Personen Diskriminierungsrisiken aussetzen. Die Arbeit stellt sich insbesondere der Frage, ob eine traditionell erforderliche individuelle Einwilligung des Spenders in zu diesem Zeitpunkt jedoch noch unbestimmte zukünftige Forschungszwecke ausreichen kann oder ob und wie der Spender weitergehend an Entscheidungen das Schicksal seiner sensiblen Proben und Daten betreffend beteiligt werden kann und muss. Dabei werden insbesondere innovative Trust-Modelle auf ihr Potenzial im deutschen Rechtsraum hin untersucht.
Category: Law

Property In The Body

Author : Donna Dickenson
ISBN : 9781108211239
Genre : Law
File Size : 60.59 MB
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We live in an era when all bodies are potentially 'feminised' by being rendered 'open-access' for biomedical research and clinical practice. Adopting a theoretically sophisticated and practical approach, Property in the Body: Feminist Perspectives rejects the notion that the sale of bodily tissue enhances the freedom of the individual through an increase in moral agency. Combining feminist theory and bioethics, it also addresses the omissions which are inherent in policy analysis and academic debate. For example, whilst women's tissue is particularly central to new biotechnologies, the requirement for female labour is largely ignored in subsequent evaluation. In its fully revised second edition, this book also considers how policies and developments vary between countries and within specific areas of biomedicine itself. Most importantly, it analyses the new and emerging technologies of this field whilst returning to the core questions and fears which are inextricably linked to the commercialisation of the body.
Category: Law

The Impact Of Science And Technology On The Rights Of The Individual

Author : Nicola Lucchi
ISBN : 9783319304397
Genre : Law
File Size : 23.23 MB
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The volume is devoted to the relevant problems in the legal sphere, created and generated by recent advances in science and technology. In particular, it investigates a series of cutting-edge contemporary and controversial case-studies where scientific and technological issues intersect with individual legal rights. The book addresses challenging topics at the intersection of communication technologies and biotech innovations such as freedom of expression, right to health, knowledge production, Internet content regulation, accessibility and freedom of scientific research.
Category: Law

Law And Bioethics

Author : Michael D. A. Freeman
ISBN : STANFORD:36105134406730
Genre : Law
File Size : 81.72 MB
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Current Legal Issues, like its sister volume Current Legal Problems, is based upon an annual colloquium held at University College London. Each year, leading scholars from around the world gather to discuss the relationship between law and another discipline of thought. Each colloquium examines how the external discipline is conceived in legal thought and argument, how the law is pictured in that discipline, and analyses points of controversy in the use, and abuse, of extra-legal arguments within legal theory and practice. Law and Bioethics, the latest volume in the Current Legal Issues series, contains a broad range of essays by scholars interested in the interactions between law and bioethics. It includes studies examining the regulation of stem cell research, human rights and bioethics, the regulation of reproductive technologies, and distributive justice in healthcare and pandemic planning.
Category: Law

Reloading Data Protection

Author : Serge Gutwirth
ISBN : 9789400775404
Genre : Law
File Size : 86.68 MB
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This volume brings together papers that offer conceptual analyses, highlight issues, propose solutions, and discuss practices regarding privacy and data protection. The first section of the book provides an overview of developments in data protection in different parts of the world. The second section focuses on one of the most captivating innovations of the data protection package: how to forget, and the right to be forgotten in a digital world. The third section presents studies on a recurring, and still important and much disputed, theme of the Computers, Privacy and Data Protection (CPDP) conferences : the surveillance, control and steering of individuals and groups of people and the increasing number of performing tools (data mining, profiling, convergence) to achieve those objectives. This part is illustrated by examples from the domain of law enforcement and smart surveillance. The book concludes with five chapters that advance our understanding of the changing nature of privacy (concerns) and data protection.
Category: Law

Gesetze Der Angst

Author : Cass R. Sunstein
ISBN : 3518584790
Genre : Civil rights
File Size : 33.9 MB
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Category: Civil rights