ALTRUISM RECONSIDERED EXPLORING NEW APPROACHES TO PROPERTY IN HUMAN TISSUE MEDICAL LAW AND ETHICS

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Altruism Reconsidered

Author : Peter Sýkora
ISBN : 9781317182498
Genre : Law
File Size : 31.17 MB
Format : PDF, Kindle
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As the use of human body parts has become increasingly commercialized, a need has arisen for new approaches to regulation that moves beyond the paradigm of altruism. During the course of this discussion, the notion of property has become a key concept. Focusing on practical and conceptual perspectives, the multidisciplinary group of authors, which includes specialists in philosophy, law, sociology, biology and medicine, have come together with practicing lawyers to consider both legal provisions and patterns of regulation in countries across Europe. Identifying divergences between different legal traditions, the authors explore various conceptual models which could be used to improve and to guide policy making. With this twin focus on practical and conceptual perspectives, this volume sets the standard for a detailed and innovative discussion of issues surrounding the regulation of research on human tissue.
Category: Law

Ethics Law And Governance Of Biobanking

Author : Deborah Mascalzoni
ISBN : 9789401795739
Genre : Medical
File Size : 86.53 MB
Format : PDF, Mobi
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Biobank research and genomic information are changing the way we look at health and medicine. Genomics challenges our values and has always been controversial and difficult to regulate. In the future lies the promise of tailored medical treatments and pharmacogenomics but the borders between medical research and clinical practice are becoming blurred. We see sequencing platforms for research that can have diagnostic value for patients. Clinical applications and research have been kept separate, but the blurring lines challenges existing regulations and ethical frameworks. Then how do we regulate it? This book contains an overview of the existing regulatory landscape for biobank research in the Western world and some critical chapters to show how regulations and ethical frameworks are developed and work. How should international sharing work? How design an ethical informed consent? An underlying critique: the regulatory systems are becoming increasingly complex and opaque. The international community is building systems that should respond to that. According to the authors in fact, it is time to turn the ship around. Biobank researchers have a moral responsibility to look at and assess their work in relation to the bigger picture: the shared norms and values of current society. Research ethics shouldn’t only be a matter of bioethicists writing guidelines that professionals have to follow. Ethics should be practiced through discourse and regulatory frameworks need to be part of that public discourse. Ethics review should be then not merely application of bureaucracy and a burden for researchers but an arena where researchers discuss their projects, receive advice and practice their ethics skills.
Category: Medical

Bioequity Property And The Human Body

Author : Nils Hoppe
ISBN : 9781317174257
Genre : Law
File Size : 65.97 MB
Format : PDF, Docs
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Recent scandals involving the use of human body parts have highlighted the need for legal clarification surrounding property law and the use of human tissue. This book advances the notion that the legal basis for dealing with this is already available in the law but has thus far neither been used nor discussed. Proposing an alternative approach to constructing entitlements in human tissue and resolving resulting property conflicts, a new methodology is also advanced for abstracting different concepts within the debate which enables comparison and distinction between different cases of entitlement and retention.
Category: Law

The Right To Know And The Right Not To Know

Author : Ruth Chadwick
ISBN : 9781316062111
Genre : Law
File Size : 89.68 MB
Format : PDF, Docs
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The privacy concerns discussed in the 1990s in relation to the New Genetics failed to anticipate the relevant issues for individuals, families, geneticists and society. Consumers, for example, can now buy their personal genetic information and share it online. The challenges facing genetic privacy have evolved as new biotechnologies have developed, and personal privacy is increasingly challenged by the irrepressible flow of electronic data between the personal and public spheres and by surveillance for terrorism and security risks. This book considers the right to know and the right not to know about your own and others' genomes. It discusses new privacy concerns and developments in ethical thinking, with the greater emphasis on solidarity and equity. The multidisciplinary approach covers current topics such as biobanks and forensic databases, DIY testing, group rights and accountability, the food we eat and the role of the press and the new digital media.
Category: Law

The Gift Relationship Reissue

Author : Titmuss, Richard
ISBN : 9781447349570
Genre : Political Science
File Size : 61.87 MB
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Richard Titmuss (1907-1973) was a pioneer in the field of social administration (now social policy). In this reissued classic, listed by the New York Times as one of the 10 most important books of the year when it was first published in 1970, he compares blood donation in the US and UK, contrasting the British system of reliance on voluntary donors to the American one in which the blood supply is in the hands of for-profit enterprises, concluding that a system based on altruism is both safer and more economically efficient. Titmuss’s argument about how altruism binds societies together has proved a powerful tool in the analysis of welfare provision. His analysis is even more topical now in an age of ever changing health care policy and at a time when health and welfare systems are under sustained attack from many quarters.
Category: Political Science

The Immortal Life Of Henrietta Lacks

Author : Rebecca Skloot
ISBN : 9781400052189
Genre : Biography & Autobiography
File Size : 29.35 MB
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Documents the story of how scientists took cells from an unsuspecting descendant of freed slaves and created a human cell line that has been kept alive indefinitely, enabling discoveries in such areas as cancer research, in vitro fertilization and gene mapping. Includes reading-group guide. Reprint. A best-selling book.
Category: Biography & Autobiography

Organ Donation

Author : Institute of Medicine
ISBN : 0309164648
Genre : Medical
File Size : 37.3 MB
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Rates of organ donation lag far behind the increasing need. At the start of 2006, more than 90,000 people were waiting to receive a solid organ (kidney, liver, lung, pancreas, heart, or intestine). Organ Donation examines a wide range of proposals to increase organ donation, including policies that presume consent for donation as well as the use of financial incentives such as direct payments, coverage of funeral expenses, and charitable contributions. This book urges federal agencies, nonprofit groups, and others to boost opportunities for people to record their decisions to donate, strengthen efforts to educate the public about the benefits of organ donation, and continue to improve donation systems. Organ Donation also supports initiatives to increase donations from people whose deaths are the result of irreversible cardiac failure. This book emphasizes that all members of society have a stake in an adequate supply of organs for patients in need, because each individual is a potential recipient as well as a potential donor.
Category: Medical

Ethics And The Acquisition Of Organs

Author : T. M. Wilkinson
ISBN : 9780199607860
Genre : Medical
File Size : 49.11 MB
Format : PDF
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Transplantation is a medically successful and cost-effective way to treat people whose organs have failed--but not enough organs are available to meet demand. Ethics and the Acquisition of Organs is concerned with the major ethical problems raised by policies for acquiring organs. The main topics are the rights of the dead, the role of the family, opt in and opt out systems, the conscription of organs, living organ donation from adults and children, directed donation and priority for donors, and the sale of organs. In this ground-breaking work, T. M. Wilkinson uses concepts from moral and political theory such as autonomy, rights, posthumous interests, justice, and well-being, in a context informed by the clinical, legal, and policy aspects of transplantation. The result is a rigorous philosophical exploration of real problems and options. He argues that the ethics of acquiring organs for transplantation is not only of great intellectual interest, but also of practical importance. As such, this book will be of profit not only to students and academics who work in applied ethics and bioethics, but also to the lawyers, policy-makers, clinicians, and lobby groups interested in transplantation.
Category: Medical

Ethics In Public Health And Health Policy

Author : Daniel Strech
ISBN : 9789400763746
Genre : Philosophy
File Size : 47.13 MB
Format : PDF
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Ethical issues associated with public health and health policy--related, for example, to pandemic plans and vaccination policies (c.f. SARS or pandemic influenza), preventive measures like screening (e.g. for breast cancer or dementia) or health information campaigns, social inequalities or health care rationing--are increasing in worldwide importance. Evidence-based information for valid benefit-harm assessment is often rare and hard to get for participants in public health interventions. Program implementation often disregards requirements of fair decision-making processes (like public participation, transparency, etc.). Originating from an international conference (based on a call for abstracts and external review), this volume contains contributions from a group of experts from multiple disciplines and countries. It covers (i) conceptual foundations of public health ethics, (ii) methodological approaches and (iii) normative analyses of specific issues and cases. Bridging theoretical foundations with practical applications, this volume provides a valuable resource for researchers, practitioners and students concerned with public health practice and policy.
Category: Philosophy